Chronic Disease Registry

  • Identifies and locates various patients' population for studies including clinical studies, natural history of any disease or any other type of studies

  • Collects and provides important health information on patients

  • Collects data in standardized manner to evaluate specified outcomes for a population with a specific disease

  • Enables follow-up on individual patients and patient populations

  • Promotes improved diagnosis and clinical care

  • Measures quality of life and quality of patients 'care

  • Communicates with individual patient

  • Connects families to the research opportunities

  • Provides community support for families

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